Crohn's Disease

[docandjeanie]

[quote="IrishPirate"]Your nephew is most definitely in my prayers. We have been dealing with this awful disease for almost 5 years now. My son was dianosed when he was 11. He started with a fistula and snowballed into severe symptoms. He has never had a "remission" but we are always hopeful that it will happen. He is steroid dependent, so the Dr's are trying to keep him off them. Remicade is no longer effective. Colonoscopy showed severe inflamation even after high doses twice as often. His last blood work showed that he is malnurished(Common w/this disease) and enemic, so now he inserts an NG tube every night and gets his nourishment from a formula pumped into his stomach overnight. He hasn't had any "real" food in a week. He's the type of kid who wakes up asking "whats for dinner?" This is very hard on everybody involved, we pray that this therapy works, its so hard to see a kid in pain. Not everybody has it this severe, and some have it worse. It's a nasty disease!

Deb and Tom,

Phin power to Tyler

(((((Tyler))))))))

Tyler get well soon, and hope this is helping you out a bit...

much love to you.

Aunt Jeanie