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anyone know anything about it?

seems like a pretty awful diagnosis. just curious if any others are dealing with it.

Don't know much about it at all, but when Jack Kevorkian helped an endometriosis sufferer end her life, he lost the support of any doctors that had been sympathetic to his cause. They all agreed that the condition was managable, and by no means worth quitting life over.
The patient's regular psychiatrist was never consulted by Jack, and he was the one who knew that her greatest suffering was NOT from the condition but from other psychological issues.
The psychiatrist said: He killed a healthy lady, plain and simple"

Longboardn' ASEL&S wrote:Don't know much about it at all, but when Jack Kevorkian helped an endometriosis sufferer end her life, he lost the support of any doctors that had been sympathetic to his cause. They all agreed that the condition was managable, and by no means worth quitting life over.
The patient's regular psychiatrist was never consulted by Jack, and he was the one who knew that her greatest suffering was NOT from the condition but from other psychological issues.
The psychiatrist said: He killed a healthy lady, plain and simple"

it's treatable, but it is a nasty disease. (not the topic, the effects some of the treatments.)

Melly, If you do a search on Google for the topic. There are a few good medical sites that will tell you what it what it is, treatment options, etc.

RinglingRingling wrote:

Longboardn' ASEL&S wrote:Don't know much about it at all, but when Jack Kevorkian helped an endometriosis sufferer end her life, he lost the support of any doctors that had been sympathetic to his cause. They all agreed that the condition was managable, and by no means worth quitting life over.
The patient's regular psychiatrist was never consulted by Jack, and he was the one who knew that her greatest suffering was NOT from the condition but from other psychological issues.
The psychiatrist said: He killed a healthy lady, plain and simple"

it's treatable, but it is a nasty disease. (not the topic, the effects some of the treatments.)

Melly, If you do a search on Google for the topic. There are a few good medical sites that will tell you what it what it is, treatment options, etc.

ya i've read about it.

i'm just kind of looking for more support kind of sites..or others who may have gone through it.

MelliJellyBean wrote:

RinglingRingling wrote:

Longboardn' ASEL&S wrote:Don't know much about it at all, but when Jack Kevorkian helped an endometriosis sufferer end her life, he lost the support of any doctors that had been sympathetic to his cause. They all agreed that the condition was managable, and by no means worth quitting life over.
The patient's regular psychiatrist was never consulted by Jack, and he was the one who knew that her greatest suffering was NOT from the condition but from other psychological issues.
The psychiatrist said: He killed a healthy lady, plain and simple"

it's treatable, but it is a nasty disease. (not the topic, the effects some of the treatments.)

Melly, If you do a search on Google for the topic. There are a few good medical sites that will tell you what it what it is, treatment options, etc.

ya i've read about it.

i'm just kind of looking for more support kind of sites..or others who may have gone through it.

R2 doesn't have a uterus.

Longboardn' ASEL&S wrote:Don't know much about it at all, but when Jack Kevorkian helped an endometriosis sufferer end her life, he lost the support of any doctors that had been sympathetic to his cause. They all agreed that the condition was managable, and by no means worth quitting life over.
The patient's regular psychiatrist was never consulted by Jack, and he was the one who knew that her greatest suffering was NOT from the condition but from other psychological issues.
The psychiatrist said: He killed a healthy lady, plain and simple"

maybe those psychological issues came from the treatment and being pumped with hormones!!! Which is part of having the disease.

do you know how painful it is? I dont' think it's worth quitting life over. but it's definitely a diminished quality of life in alot of cases. no cure.

I don't know much about it, but my sister-in-law had it and had to have a hysterectomy, so I know it can be horrible.

Sorry I don't have any insight for you, but here's some PHIN POWER to you..... (((MELLI)))

buffettbride wrote:

MelliJellyBean wrote:

RinglingRingling wrote:

Longboardn' ASEL&S wrote:Don't know much about it at all, but when Jack Kevorkian helped an endometriosis sufferer end her life, he lost the support of any doctors that had been sympathetic to his cause. They all agreed that the condition was managable, and by no means worth quitting life over.
The patient's regular psychiatrist was never consulted by Jack, and he was the one who knew that her greatest suffering was NOT from the condition but from other psychological issues.
The psychiatrist said: He killed a healthy lady, plain and simple"

it's treatable, but it is a nasty disease. (not the topic, the effects some of the treatments.)

Melly, If you do a search on Google for the topic. There are a few good medical sites that will tell you what it what it is, treatment options, etc.

ya i've read about it.

i'm just kind of looking for more support kind of sites..or others who may have gone through it.

R2 doesn't have a uterus.

yes, sadly.. I've been uterine-free since '63

Healthboards.com is a supportive forum that has a womens' health category.

depending on whether a person is planning additional children, a hysterectomy is often effective in eliminating endometriosis issues.

Mrs Z had severe endometriosis pain until she had a hysterectomy at age 35. No problems since.

Melli...No advice...it's one thing I DIDN'T get.


Just bounced in for this ((((Melli))))

comemonday wrote:Healthboards.com is a supportive forum that has a womens' health category.

thank you! i'll definitely check that out.


Well i'm only 28 and no children.

Although some have told me that getting pregnant is something that really helps-almost gets rid of the pain.

*sigh*

MelliJellyBean wrote:

comemonday wrote:Healthboards.com is a supportive forum that has a womens' health category.

thank you! i'll definitely check that out.


Well i'm only 28 and no children.

Although some have told me that getting pregnant is something that really helps-almost gets rid of the pain.

*sigh*

Melli

My boys' mother was diagnosed with endometriosis in about 1984 (she was 24), and had a lot of pain. We had my oldest in 1986, so the pain went away sometime in late 1985, and the symptoms have NEVER returned, to this day. Have hope ... in more ways than one!

Corey

redwinemaker wrote:

MelliJellyBean wrote:

comemonday wrote:Healthboards.com is a supportive forum that has a womens' health category.

thank you! i'll definitely check that out.


Well i'm only 28 and no children.

Although some have told me that getting pregnant is something that really helps-almost gets rid of the pain.

*sigh*

Melli

My boys' mother was diagnosed with endometriosis in about 1984 (she was 24), and had a lot of pain. We had my oldest in 1986, so the pain went away sometime in late 1985, and the symptoms have NEVER returned, to this day. Have hope ... in more ways than one!

Corey

thank you. that does give me hope!! i wasn't sure about having children. but now, i guess this is God's way of telling me I should...

I was diagnosed with a mild case. They were able to go in laproscopcly (sp) and clear most of it out. I may have to go in and have the procedure again in the future. My doctor did say that birth control pills help control the disease. I don't have a whole lot of information because it wasn't my original diagnosis but you can PM me if you want

My best friend had it (has it) and when the (I dont know what the things are called polyps?) polyp things grow inside you , they get painful. When they removed hers it was the size of a grapefruit. It made it into a medical book and all! She had trouble getting pregnant for years, but finally did. The Dr. told her that pregnancy could make it go away, but she thinks it may be growing back again. I also lknow that it is inherited..her mom as well as her cousin have it. Obviously her mom was able to get pregnant (twice), but her cousin hasn't been. As far as ending your life over it...I don't remember it being that extreme. but I guess the possibility of not having a baby can really really get to you. Anyway...hope that helps some. I can talk to her and get more info for you if you want.

MDown wrote:http://en.wikipedia.org/wiki/Endometriosis

yes, thanks. i've already seen that.


I've done basic research. I know what it is. I'm looking for experiences, support. that kind of thing.

Melli, sorry to hear you're afflicted with this.... it sucks......

couple of things... if you can take birth control pills, they do help a great deal. As others have said, bearing a child often helps - it helped tremendously in my case.

Once you're done having children (if you intend to, at all) you might consider a hysterectomy where they remove your uterus and leave your ovaries in place. I had fibroids as well as endometriosis when I had a hysterectomy, and I wish I'd had surgery a year or two earlier, because it so changed my quality of life!

SchoolGirlHeart wrote:Melli, sorry to hear you're afflicted with this.... it sucks......

couple of things... if you can take birth control pills, they do help a great deal. As others have said, bearing a child often helps - it helped tremendously in my case.

Once you're done having children (if you intend to, at all) you might consider a hysterectomy where they remove your uterus and leave your ovaries in place. I had fibroids as well as endometriosis when I had a hysterectomy, and I wish I'd had surgery a year or two earlier, because it so changed my quality of life!

I'm not sure why they took me off my pill. I am supposed to get Lupron shots for 6 months. I'm pretty scared about that. I've been warming up to the idea of maybe having a kid in the future, so hysteretomy isn't an option for me right now, but eventually, yes, I'll probably do that. Chronic pain is NOT cool!!!